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Unfortunately, RSD (Reflex Sympathetic Dystrophy Syndrome) is inadequately understood by patients and healthcare professionals. It is a chronic neurological syndrome characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, extreme sensitivity to touch. Alecia, who has RSD, says, “Since RSD is still an unknown disease it is difficult to get funding for research. My husband and I would like to try to help as much as we can, but because RSD has destroyed our finances, we are unable to help more. I feel bad about that, but want to try to help others who are suffering with this painful disease. I want more people to know about and how it affects people’s lives.” Sadly, this disease effects more people than one would realize. According to the RSDSA website (http://www.rsds.org), “Reflex Sympathetic Dystrophy Syndrome (RSD) is a chronic pain syndrome characterized by severe and relentless pain that affects between 200,000 and 1.2 million Americans.” This number does not include the people who have not been diagnosed, or are being misdiagnosed. The RSDSA organization was founded in 1984 as a way to promote public and professional awareness of RSD/CRPS and to educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers on the disabling pain it causes. When asked what we could do to help people who suffer from this disease, Alecia told us: · Volunteers are needed to hold events that will help finance
research about this disease Alecia is a wife and mother to her adult son. Before a tragic car accident that left her disabled in 1997, she was a Registered Nurse for many years. Alecia suffers from RSD that has her dealing with severe pain daily. In 2004, her husband started the online store (www.heartfilledbaskets.com) as a way to teach her how to use the computer. Unfortunately it didn't work out as well as they would have liked. Her illness has left her unable to resume a work schedule. But her husband Frank admits that the business has grown into much more than a hobby, because it is now a way for them to try and supplement her lose of income for the last 10 years and into the future. [more] Today, Alecia provides emotional support to Frank as much as she can as he works to sell gift baskets and a variety of gifts through the online store. The website offers corporate and personal gifts, gift baskets and flowers. More than anything she wants to do something about the lack of funds for research in finding a cure for RSD. Just doing something means a lot to both her and her husband. She wants others with this disease not to give up, to do things to keep their minds stimulated, and most of all, to eventually be free from the daily pain. For more information on how to purchase their products to support RSD, contact Alecia or Frank at 610-993-5810 or visit the website Heart Filled Baskets # # # Reflex Sympathetic DystrophyComplex Regional Pain SyndromeReflex Sympathetic Dystrophy RSD is also known as CRPS or Complex Regional Pain Syndrome. The symptoms include:
(See other symptoms below) Cause:
More Symptoms: The pain of RSD is beyond the pain you would expect at the injury site. It occurs with a broken bone or injury that does not follow the normal healing pattern. The sympathetic nervous system becomes abnormal after the injury. The pain is:
Explanation Of words used in relation to RSD; Allodynia - Pain from a non-injurious stimulus to the skin. Diagnoses: Symptom Based Early Treatment Important This is for information only. It is basic information that only briefly touches on this complex disease process. Our information is superseded by your doctors education, knowledge and licensure . |
